Anger at Health Insurance Prompts the Public to Fund a 9-Year-Old’s Bionic Arm
A 9-year-old girl born without a left hand had “started asking for a robotic arm to help her feel more confident,” her mother told the Washington Post. So her parents met with a consultant from Open Bionics, which fits people with lightweight, 3D-printed prostheses that function more like a natural arm and hand — known as Hero Arms.
The bionic arms are manufactured in Britain and cost about $24,000, but the Batemans were hopeful that their health insurance company, Select Health, would pay for one for [their 9-year-old daughter] Remi. Remi said she tried using one of the robotic arms for a few days in Colorado and was thrilled to cut her food with a knife and fork for the first time and carry plates with two hands. “I loved it so much — I could function like a full human,” she said. “I was able to steal my dad’s hat. When they fit me for my arm, I told them I wanted it to be pink.”
On Oct. 1, the Batemans sent a prescription for the robotic arm and office notes from Remi’s pediatrician to Select Health for approval. One week later, their request was denied, Jami Bateman said. “They sent us a letter saying it was not medically necessary for Remi to have a Hero Arm and that it was for cosmetic use only,” she said. “We appealed twice and were again denied.”
“It was very upsetting, and Remi cried when I told her, because we’d all been so hopeful,” Bateman added. “It broke our hearts.” In mid-December, a frustrated Jami Bateman tried an approach she’d seen other people use when their health insurance failed them: She started a GoFundMe for her daughter, hoping to purchase a robotic arm through the kindness of strangers…. Bateman was stunned when friends and strangers chipped in more than $30,000 in just a few days, surpassing the family’s $24,000 goal. People who donated understood the Batemans’ predicament, and many were furious on their behalf.
As donations poured in, the Batemans received a call from somebody else who wanted to help. Andy Schoonover is the CEO of CrowdHealth, a subscriber-based resource that helps people negotiate lower costs for medical bills. He told the family on Dec. 16 that his company wanted to pay the entire cost of Remi’s bionic arm. “We were looking for some ways to help people during the holiday season, and I stumbled upon Remi’s story on social media,” Schoonover said. “We were honored to help her out….”
Remi quickly came up with an idea. “She came to me and said, ‘Mom, I know how it feels to have one hand. Is there someone else we can help?” Bateman recalled. She said she contacted Open Bionics and learned there was a long list of children who had been turned down for Hero Arms by their health insurance companies for the same reason Remi was denied…
Somewhere in Maryland, the mother of a 9-year-old boy born without a left hand suddenly got a surprise phone call explaining Remi’s decision. “I was so proud of Remi that I immediately started crying,” she said. “She wanted to give my son an opportunity that I was unable to give him. It just touched my heart.”
They had been trying to raise money by running a lemonade stand. But yesterday Remi’s GoFundMe page posted an update. The 9-year-old boy’s arm had now been paid for.
“And maybe, if more donations roll in we can help a third child!”
Read more of this story at Slashdot.
A 9-year-old girl born without a left hand had “started asking for a robotic arm to help her feel more confident,” her mother told the Washington Post. So her parents met with a consultant from Open Bionics, which fits people with lightweight, 3D-printed prostheses that function more like a natural arm and hand — known as Hero Arms.
The bionic arms are manufactured in Britain and cost about $24,000, but the Batemans were hopeful that their health insurance company, Select Health, would pay for one for [their 9-year-old daughter] Remi. Remi said she tried using one of the robotic arms for a few days in Colorado and was thrilled to cut her food with a knife and fork for the first time and carry plates with two hands. “I loved it so much — I could function like a full human,” she said. “I was able to steal my dad’s hat. When they fit me for my arm, I told them I wanted it to be pink.”
On Oct. 1, the Batemans sent a prescription for the robotic arm and office notes from Remi’s pediatrician to Select Health for approval. One week later, their request was denied, Jami Bateman said. “They sent us a letter saying it was not medically necessary for Remi to have a Hero Arm and that it was for cosmetic use only,” she said. “We appealed twice and were again denied.”
“It was very upsetting, and Remi cried when I told her, because we’d all been so hopeful,” Bateman added. “It broke our hearts.” In mid-December, a frustrated Jami Bateman tried an approach she’d seen other people use when their health insurance failed them: She started a GoFundMe for her daughter, hoping to purchase a robotic arm through the kindness of strangers…. Bateman was stunned when friends and strangers chipped in more than $30,000 in just a few days, surpassing the family’s $24,000 goal. People who donated understood the Batemans’ predicament, and many were furious on their behalf.
As donations poured in, the Batemans received a call from somebody else who wanted to help. Andy Schoonover is the CEO of CrowdHealth, a subscriber-based resource that helps people negotiate lower costs for medical bills. He told the family on Dec. 16 that his company wanted to pay the entire cost of Remi’s bionic arm. “We were looking for some ways to help people during the holiday season, and I stumbled upon Remi’s story on social media,” Schoonover said. “We were honored to help her out….”
Remi quickly came up with an idea. “She came to me and said, ‘Mom, I know how it feels to have one hand. Is there someone else we can help?” Bateman recalled. She said she contacted Open Bionics and learned there was a long list of children who had been turned down for Hero Arms by their health insurance companies for the same reason Remi was denied…
Somewhere in Maryland, the mother of a 9-year-old boy born without a left hand suddenly got a surprise phone call explaining Remi’s decision. “I was so proud of Remi that I immediately started crying,” she said. “She wanted to give my son an opportunity that I was unable to give him. It just touched my heart.”
They had been trying to raise money by running a lemonade stand. But yesterday Remi’s GoFundMe page posted an update. The 9-year-old boy’s arm had now been paid for.
“And maybe, if more donations roll in we can help a third child!”
Read more of this story at Slashdot.